ISOO Privacy Policy
Last updated – June 19, 2025
The International Society of Ocular Oncology (“ISOO,” “we,” “our,” or “us”) is committed to protecting the privacy of its Members, website visitors, and other individuals who interact with us. This Privacy Policy explains what personal information we collect through www.isoo.org and any other ISOO-managed websites (collectively, the “Website”), how we use and share that information, and the choices and rights you have. By using the Website or submitting information to us, you agree to the practices described here and to our Terms of Use.
1. Information We Collect
Information you provide to us
• Membership and account details (name, professional title, contact information, country, age confirmation, credentials, CV, letters of recommendation).
• Registration and payment information for events, dues, or donations (billing address, payment card details—processed securely by compliant third-party providers).
• Communications you send us (emails, inquiries, survey responses, feedback).
• Content you choose to post or upload to the Website (profile photo, abstracts, presentations, forum comments).Information we collect automatically
• Log and usage data (IP address, browser type, referring pages, pages visited, date/time stamps).
• Cookies and similar technologies that remember preferences and help us understand how visitors navigate the site.Information we receive from third parties
• Event-management and membership platforms (e.g., XCD) that host registration forms or virtual conference tools.
• Payment processors, analytics providers (e.g., Google Analytics), or email service vendors that support our operations.
2. How We Use Your Information
We use personal information to:
• Create and manage membership records and Website user accounts.
• Process event registrations, dues payments, and donations.
• Communicate about meetings, research opportunities, society news, elections, and policy updates.
• Maintain the security and functionality of the Website, including troubleshooting and analytics.
• Comply with legal obligations and protect ISOO’s rights and those of our Members.
• Show your professional details on member directories or conference materials, when relevant to ISOO’s mission.
3. Legal Bases for Processing (EEA/UK Visitors)
If you are in the European Economic Area or the United Kingdom, we process your information under one or more of the following legal bases: (a) to perform our contract with you (membership agreement or event registration), (b) with your consent, (c) to meet legal obligations, and (d) for our legitimate interests, such as improving society services, provided those interests are not overridden by your rights.
4. How We Share Information
We do not sell your personal information. We share it only:
• With service providers who act on our behalf (e.g., membership software, payment processors, email tools) and who are bound by confidentiality obligations.
• With ISOO Officers, committee members, and volunteers who need it to carry out society business.
• With other Members or event participants when you register for an ISOO event or publish materials through us.
• When required by law, court order, or to protect the rights, property, or safety of ISOO, our Members, or the public.
• With your permission or at your direction.
5. International Transfers
ISOO is headquartered in the United States. If you access the Website from outside the U.S., your information will be transferred to, stored, and processed in the U.S. and possibly other countries whose data-protection laws may differ from those where you live. We use appropriate safeguards, such as standard contractual clauses, when we transfer personal data from the EEA/UK.
6. Cookies and Similar Technologies
We use cookies to recognize repeat visitors, remember preferences (e.g., language), and gather analytics. You may disable cookies in your browser; however, some Website features may not function properly.
7. Data Security
We employ administrative, technical, and physical safeguards designed to protect personal information from loss, misuse, unauthorized access, alteration, or destruction. No internet transmission is completely secure, so we cannot guarantee absolute security.
8. Data Retention
We retain personal information for as long as needed to fulfill the purposes outlined in this Policy, comply with our legal obligations, resolve disputes, or enforce our agreements. Membership records may be kept for as long as you are a Member and for a reasonable period thereafter.
9. Your Rights and Choices
Depending on your location, you may have the right to:
• Request access to the personal information we hold about you.
• Request correction, deletion, or restriction of your information.
• Object to certain processing or ask us to export your data (data portability).
• Withdraw consent at any time where processing is based on consent (this does not affect processing already performed).
To exercise these rights, email admin@isoo.org or write to the address below. We will respond in accordance with applicable laws. We may need to verify your identity before fulfilling your request.
10. Children’s Privacy
The Website is intended for individuals 25 years of age or older. We do not knowingly collect personal information from anyone under 25. If you believe we have inadvertently collected such data, please contact us and we will promptly delete it.
11. Third-Party Sites
Our Website may link to external sites that we do not control. This Policy does not apply to those sites. We recommend reviewing the privacy policies of any third-party sites you visit.
12. Changes to This Policy
We may update this Privacy Policy from time to time. When we do, we will post the revised version with an updated “Last updated” date. Significant changes will be communicated by email or a prominent Website notice.
13. Contact Us
For questions, requests, or concerns about this Privacy Policy or our data practices, please contact:
Krystal Crowe, ISOO Administrator
International Society of Ocular Oncology
N1096 Shaky Lake Rd., Fremont, WI 54940 USA
Email: admin@isoo.org